The China Children and Teenagers’ Fund (CCTF) teams up with Shire China to organize a summer camp for children with hemophilia in 2017, helping these children and their families know more about world advanced hemophilia treatment concepts and disease management methods on a daily basis.

The first summer camp offered disease science education lectures and parent-child psychological counseling, and it attracted more than 50 families of children with hemophilia.

 CCTF teams up with Shire China to organize a summer camp for children with hemophilia.

With the development of medicine, fortunately, patients with hemophilia are seeing hope now.

"The only viable method at that time was blood transfusion,” said Ruan Haibiao, in his 60s, recalling his unpleasant experience of treating hemophilia. I barely survived depending on the slightest factor VIII from the blood transfusion.

"I began to receive recombinant factors preventive treatment in October 2016, and at the same time, I took rehabilitation training with the help of a doctor. After about 4 months, I could stand up slowly." Zhao Guoxiang, 24, who suffered from hemophilia for more than 20 years, told his story of being able to stand up again with great excitement.

Compared with Ruan and Zhao, six-year-old Dong Dong is lucky enough because he has been receiving preventive treatment the time when he was diagnosed with hemophilia at the age of 10 months. Now he can go to school and run like an ordinary child of the same age.

At the same time, patients with hemophilia got training on disease management in many regions. Professional medical personnel explained daily disease management precautions, including teaching patients and their families to self-inject recombinant factors. If bleeding occurs all of sudden, the patient can complete the injection at home and control the disease condition in a timely and effective manner.

Children with hemophilia have been receiving assistance and help from charity organizations and caring enterprises in many regions across China. By the end of 2016, the CCTF and Shire China have launched hemophilia children assistance projects, which has donated about 25.71 million yuan worth of medicines and helped more than 500 child patients.